📣 Manitoba Rett Syndrome families – We need your help!
This is an opportunity for Manitoba's rare disease community to have its voice heard.
The Canadian Organization for Rare Disorders (CORD) is asking people affected by rare diseases to complete its Rare Disease Readiness Survey. The information collected will help inform discussions with the Manitoba government about rare disease diagnosis, care, and treatment.
If you are a parent, caregiver, family member, healthcare professional, researcher, educator, or someone connected to the rare disease community, please take a few minutes to complete the survey.
💜 Then, please share it.
The more Manitoba responses that are collected, the stronger our voice will be. We want families living with Rett syndrome—and all rare diseases—to be represented.
⏰ The survey closes July 26, so we only have a short time to gather as many Manitoba responses as possible.
Thank you for helping ensure Manitoba's rare disease community is heard.